Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
2002 Sproul Road102
Executive Director: Jessica Wickersham
The Delaware Valley Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
Philadelphia CF Cycle for Life 2019
8:00 AM, August 11, 2019
Conshohocken Brewing Company
Delaware Valley Chapter
Get your wheels in motion and join us for our annual CF Cycle for Life event as we ride through some of the most picturesque and scenic terrain in Philadelphia. CF Cycle for Life is a fully-supported ride with route options of 10, 20, 34, & 65 miles.
TBD, September 21, 2019
Green Lane Park
Delaware - Philadelphia
Trek for a Cure takes hikers through the scenic trails of Green Lane Park in northwestern Montgomery County, to raise funds and awareness for the Cystic Fibrosis Foundation. The Delaware Valley Chapter's Trek for a Cure, a pledge-based fundraiser, is a one-day hike where participants can select from various trail loops based on their comfort level. Options will range from a 1-mile family friendly loop, up to a 22-mile test of endurance. At the end of your hike, there will be a celebratory Post-Hike party. Hotel packages, (1 or 2 day stays), are available upon request. Participants must raise a minimum of $1,250 in pledges in order to take part.
Xtreme Hike Delaware Valley 2019
6:00am, September 21, 2019
Green Lane State Park
Delaware Valley - Philadelphia
The Delaware Valley's Chapter's 7th Annual Xtreme Hike takes place at Green Lane Park, in Montgomery County Pennsylvania. All hikers will enjoy accommodations for three days and two nights at the Holiday Inn in Lansdale, PA.
Cocktails for a Cure
6:30 PM, September 27, 2019
Woodcrest Country Club
Cocktails for a Cure will offer a relaxed, yet lively, evening with picturesque golf course views. The night will be highlighted by a martini bar, delicious food stations, an inspiring program, music, dancing and the chance to bid on some of the region's most unique auction items during the silent auction.
Philadelphia CF Climb 2019
9:00 AM, November 9, 2019
Join us for the 32nd Annual CF Climb at our new venue, Lincoln Financial Field, home of 2018 Super Bowl Champions, the Philadelphia Eagles. Participants will have the opportunity to conquer over 2,800 stairs, either for fun, or competitively in our Timed Climb category.
14th Annual Breath of Life Gala
6:00 PM, November 16, 2019
Crystal Tea Room
Join us for an exceptional evening that offers an opportunity for individuals and companies to come together and invest in the vital research needed to find a cure for cystic fibrosis. This unparalleled evening honors an outstanding community member and medical honoree, who are making a difference in the cystic fibrosis community. This extraordinary night features entertainment, live and silent auctions, delicious delicacies and the attendance of over 500 guests. The Breath of Life Gala will be held on Saturday, November 16th, at the Crystal Tea Room in Philadelphia, PA.
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Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
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800-344-4823 (toll free)
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