Each year, hundreds of volunteers from across the country participate in advocacy events that help state and federal policymakers and decision-makers understand the complexities of living with cystic fibrosis and the importance of having access to affordable, adequate care and supporting research and drug development.
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The strength of the cystic fibrosis community has driven forward incredible advancements in research and care. It’s important to remember that one voice can make all the difference.
3 min read
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Alongside the cystic fibrosis community, we advocate for policies and programs that promote access to highly specialized CF care and that help advance research and drug development.
8 min read
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Advocacy efforts to raise awareness about cystic fibrosis and ignite change don’t just happen on Capitol Hill during events like March on the Hill and Teen Advocacy Day. In fact, advocacy is a continuous effort that begins, and is highly effective, at home.
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The Congressional Cystic Fibrosis Caucus unites bipartisan members from both the U.S. House of Representatives and the U.S. Senate to raise awareness for CF, support CF research, drug discovery, and development, encourage collaboration between public and private organizations, and support access to quality and affordable care for people living with CF.
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The Cystic Fibrosis Foundation believes that civic engagement is an important way for our community to make its voice heard. During an election season, talking with candidates can be an opportunity to learn more about their views on issues that affect people with cystic fibrosis and their families.
4 min read