Learn about cystic fibrosis, a genetic lung disorder that affects the pancreas and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.
We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.
Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.
In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.
220 North Main Street Suite 104
Pamela Simms Spitzer
The Massachusetts/Rhode Island Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
Massachusetts 62nd Annual Dinner
6:00pm, February 15, 2018
Westin Waltham Hotel
Massachusetts and Rhode Island
The Cystic Fibrosis Foundation's (CFF's) Annual Dinner will bring together over 350 CF patient families, volunteers, caregivers, and medical, research, and pharmaceutical development professionals to celebrate the success of the previous year and rally behind the promise of what is to come.
Boston Marathon 2018
Varies by Wave, April 16, 2018
Run the Boston Marathon for the Cystic Fibrosis Foundation. Our Individual runners pledge to raise a minimum of $10,000 for The CF Foundation.
Massachusetts Xtreme Hike 2018
June 16, 2018
Jiminy Peak Resort
Join us for the 2018 Xtreme Hike in the beautiful Berkshires. The Xtreme Hike challenges hikers to a one day 30+/- mile hike that builds fortitude and friendships. In the mountain, hikers come together to help find and fund the cure for cystic fibrosis.
28th Annual Kluzak/Scarpa Celebrity Golf Challenge
9:30 AM, August 7, 2018
Golf Club of New England
Golf at the exclusive Golf Club of New England in Stratham, NH. Box Lunch provided on the course and a Dinner Buffet, Awards and a Silent and Live Auction in the evening.
Falmouth Road Race 2018
8:00 AM, August 19, 2018
New Balance Falmouth Road Race
The New Balance Falmouth Road Race will celebrate its 46th running in 2018 and the spirit which made the first Falmouth so special is still present today.
Rhode Island CF Cycle for Life 2018
62 Mile Riders off at 9:00 AM 23 and 12 Mile 9:45 AM, September 15, 2018
Get your wheels in motion and join us for our annual bicycle event as we ride through some of the most picturesque and scenic terrain through Little Compton, Tiverton and Westport.
Follow Us On
With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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