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News and Press Releases
About the CF Foundation CF Foundation’s Venture Philanthropy Model Featured on Front Page of The Washington Post

The Cystic Fibrosis Foundation's drug development model, mission and leadership are featured on the front page of The Washington Post today.

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About the CF Foundation | CFTR Modulators Letter to the Community on Orkambi Approval

Today we received the exciting news that the U.S. Food and Drug Administration has approved Orkambi for people with cystic fibrosis ages 12 and older who have two copies of the F508del gene mutation, the most common CF mutation.

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About the CF Foundation | Public Policy | Health Care Reform Affordable Care Act Supreme Court Decision Impacts People with CF

Today, the Supreme Court decided to uphold the Affordable Care Act, allowing individuals who purchase health insurance on exchanges to continue receiving premium subsidies.

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About the CF Foundation | Fundraising NASCAR #18 to Sport CF Foundation Logo

Millions of NASCAR fans will tune in to this Saturday's race at Chicago Speedway, where ARRIS-sponsored driver Daniel Suarez will feature the Cystic Fibrosis Foundation logo on his #18 car.

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About the CF Foundation | Public Policy | Advocacy CF Foundation Announces New National Advocacy Chairs

The Cystic Fibrosis Foundation is proud to announce our new National Advocacy Chairs, Melissa Shiffman from New York, NY, and Rebecca Schroeder from Coeur D'Alene, ID. Peter Barry, who, along with his wife Amy, has served as the Foundation's National Advocacy Chair for the last five years, announced the news at the Foundation's annual March on the Hill advocacy event on March 19.

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About the CF Foundation | Public Policy | Advocacy Volunteers from 38 States Meet with Elected Officials to Advocate for People with CF

Advocating on behalf of friends and family members with cystic fibrosis, more than 120 CF Foundation volunteers came together in the nation's capital to speak with their elected officials on behalf of friends and family members affected by the disease.

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About the CF Foundation | Research Stem Cell Therapies and Research for Cystic Fibrosis

The Cystic Fibrosis Foundation often receives questions about the safety and effectiveness of potential CF therapies. We have recently become aware of reports that certain companies are offering stem cell treatments to people with CF -- often for large fees -- based on claims that these procedures are clinically beneficial to people with CF.

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About the CF Foundation | Public Policy | Advocacy CF Foundation Meets with Private Insurers, Medicaid Officials and Other Health Experts to Help People with CF Access High Quality Care

At a meeting hosted by the Cystic Fibrosis Foundation, private insurers, state Medicaid officials, care center providers, health experts and people with CF and their families came together to discuss innovative ways to continue improving high quality CF care on February 4.

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About the CF Foundation | Get Involved | Research CF Foundation Highlights Role of the Volunteer Community in Advancing CF Science

Leaders of the Cystic Fibrosis Foundation and dedicated volunteers from the CF community came together last week around a shared commitment to not stop working until a cure is found for every person living with cystic fibrosis.

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About the CF Foundation | Public Policy Medical Student with CF to Join Michelle Obama at State of the Union Address

William Elder, Jr., a medical student with cystic fibrosis and long-time advocate for the CF community, has been invited to sit with First Lady Michelle Obama at tonight's State of the Union address. The White House invitation highlights the momentum and progress toward finding a cure for this devastating disease.

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