News

News and Press Releases
Public Policy CF Foundation Celebrates Passage of the Inflation Reduction Act

The law signals major improvements in health care affordability for people with CF.

| 3 min read
About the CF Foundation | Public Policy | Advocacy Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

| 3 min read
About the CF Foundation | Public Policy | Lung Transplantation Community Liaison Piper Beatty Participates in FDA Meeting on Organ Transplantation

Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.

| 2 min read
About the CF Foundation | Public Policy | Insurance Archived Webinar: Disability and Cystic Fibrosis

On Thursday, September 22, experts from the Social Security Administration joined the CF community for a conversation on disability eligibility and the application process.

| 1 min read
About the CF Foundation | Public Policy | Insurance Social Security Administration Updates Eligibility Requirements for Disability

The CF Foundation applauds the Social Security Administration's updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day and to Mark Launch of the Senate CF Caucus

As part of the Cystic Fibrosis Foundation's eighth annual Teen Advocacy Day, more than 75 teens from 35 states met with elected officials in Washington, D.C., on June 23 and advocated on behalf of their loved ones with cystic fibrosis.

| 3 min read
About the CF Foundation | Public Policy | Lung Transplantation CF Foundation Shares Plans to Improve Lung Transplantation at White House Event

Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.

| 2 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates on Capitol Hill and Participates in White House Precision Medicine Initiative Summit

The Cystic Fibrosis Foundation's tenth annual March on the Hill saw more than 80 volunteer advocates from 34 states convene in Washington, D.C. to speak with their members of Congress about cystic fibrosis and ways that elected officials can support the CF community and our search for a cure.

| 4 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Participates in Precision Medicine Initiative Summit Hosted by the White House

On Feb. 25, members of CF Foundation leadership and advocates from the CF community joined President Obama, National Institutes of Health (NIH) Director Francis S. Collins, Food and Drug Administration (FDA) Commissioner Robert M. Califf, White House staff and other stakeholders at the Precision Medicine Initiative Summit (PMI), hosted by the White House.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Honors Congressional Members with Legislative Champion Awards

On Feb. 24 and 25, the Cystic Fibrosis Foundation presented three Legislative Champion Awards to Senator Ron Wyden (D-Ore.), Senator Orrin Hatch (R-Utah) and Congressman Lloyd Doggett (D-Texas) for their ardent support of the CF community and their sponsorship of S. 139/H.R. 209, the Ensuring Access to Clinical Trials Act.

| 3 min read