News and Press Releases
About the CF Foundation | Public Policy | Advocacy Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

Dec. 15, 2016 | 3 min read
About the CF Foundation | Get Involved Foundation Announces 2017 Volunteer Leadership Conference Co-Chairs

Ginger Birnbaum and Mike Beatty lead efforts in Dallas for banner conference -- "teamMATEs for a Cure.”

Nov. 9, 2016 | 2 min read
About the CF Foundation | North American CF Conference | Research Cystic Fibrosis Foundation Congratulates Recipients of 2016 Research and Care Awards

At the 2016 North American Cystic Fibrosis Conference (NACFC) held on Oct. 27-29 in Orlando, Fla., the Cystic Fibrosis Foundation announced the recipients of seven awards given to members of the research and medical community whose achievements have helped advance cystic fibrosis research and care.

Nov. 8, 2016 | 4 min read
About the CF Foundation | Fundraising Actor-comedian Garry Shandling Makes a Difference for CF Community

Garry Shandling leaves a legacy gift to the Foundation in honor of his late brother, who had cystic fibrosis.

Oct. 6, 2016 | 3 min read
About the CF Foundation | CFTR Modulators FDA Expands Use of Orkambi® to Children Ages 6 to 11 With CF

The U.S. Food and Drug Administration (FDA) approved the use of lumacaftor/ivacaftor (Orkambi®) today for children with cystic fibrosis ages 6 to 11, who have two copies of the F508del mutation.

Sept. 28, 2016 | 2 min read
About the CF Foundation | Public Policy | Lung Transplantation Community Liaison Piper Beatty Participates in FDA Meeting on Organ Transplantation

Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.

Sept. 27, 2016 | 2 min read
About the CF Foundation | Public Policy | Insurance Archived Webinar: Disability and Cystic Fibrosis

On Thursday, September 22, experts from the Social Security Administration joined the CF community for a conversation on disability eligibility and the application process.

Sept. 26, 2016 | 1 min read
About the CF Foundation | Public Policy | Insurance Social Security Administration Updates Eligibility Requirements for Disability

The CF Foundation applauds the Social Security Administration's updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

Sept. 14, 2016 | 3 min read
About the CF Foundation | Research Scientists Discuss Challenges to Repair or Replace Genes at CF Research Conference

The Cystic Fibrosis Foundation invited more than 100 scientists to its research conference in Savannah, Ga., last month to discuss recent advancements in gene therapy, gene editing and stem-cell biology and how these new technologies could be applied to finding a one-time cure for cystic fibrosis.

July 21, 2016 | 3 min read
About the CF Foundation | Public Policy | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day and to Mark Launch of the Senate CF Caucus

As part of the Cystic Fibrosis Foundation's eighth annual Teen Advocacy Day, more than 75 teens from 35 states met with elected officials in Washington, D.C., on June 23 and advocated on behalf of their loved ones with cystic fibrosis.

June 28, 2016 | 3 min read