News

News and Press Releases
Advocacy | Insurance | Public Policy CF Foundation Urges Vertex Pharmaceuticals to Address Its Decision to Decrease Copay Assistance for People with Cystic Fibrosis

Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.

| 3 min read
Advocacy | Antibiotics | Public Policy 165 Organizations Urge Lawmakers to Advance PASTEUR Act Before Congress Ends

Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.

| 3 min read
Research Simplify Study Indicates Potential to Reduce Medication Burden for People With CF Taking Trikafta

Results show that people on Trikafta® enrolled in the six-week study were able to safely stop taking one of the two common CF medications without negatively affecting their health.

| 4 min read
About the CF Foundation | Our Research Approach CF Foundation Provides Additional Funding to Carmine Therapeutics for Early-Stage Research Into Potential Genetic Therapy

The Cystic Fibrosis Foundation is providing up to $5 million to develop a method to deliver a healthy copy of the CFTR gene into the lung cells of people with CF that is unlikely to trigger an immune system response.

| 4 min read
About the CF Foundation | Diagnosis CF Foundation Continues Working Toward Equity and Timeliness in Cystic Fibrosis Newborn Screening

Addressing variability in newborn screening can prevent missed diagnoses and delays in early care intervention.

| 3 min read
CFTR Modulators FDA Approves Orkambi for Children With CF Ages 1 to 2 Years

Orkambi® is now approved for use in children with cystic fibrosis ages 1-2 years who have two F508del mutations. This is the only modulator available to very young children with these mutations.

| 3 min read
About the CF Foundation | Diversity, Equity, and Inclusion CF Foundation Joins More Than 2,000 CEOs in Commitment to Advance Diversity and Inclusion in the Workplace

CEO pledge is part of the Foundation’s ongoing commitment to strengthen the organization and better serve all people with CF

| 3 min read
Public Policy CF Foundation Celebrates Passage of the Inflation Reduction Act

The law signals major improvements in health care affordability for people with CF.

| 3 min read
About the CF Foundation | Care Centers Journal of Cystic Fibrosis Spotlights the Evolving Cystic Fibrosis Care Model

The cystic fibrosis care model is evolving to support people living longer with CF and their increasingly diverse health needs. Catalyzed by the approval of Trikafta® and the COVID-19 pandemic, this adaptive and personalized care model encompasses novel ways to connect clinicians and patients.

| 4 min read
Patient Registry CF Foundation Estimates Increase in CF Population

Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era.

| 4 min read