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About the CF Foundation | Public Policy | Advocacy Advocates Raise Awareness and Speak Out on Vital CF Issues Across the Country

In 2014, the Cystic Fibrosis Foundation and advocates across the country played a vital role in shaping issues important to the CF community. CF advocates attended more than 500 meetings with elected officials and sent them more than 60,000 messages advocating on behalf of people with CF.

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About the CF Foundation | Public Policy | Insurance Insurance Coverage Remains a Top Concern for People with Cystic Fibrosis

Lack of insurance coverage for cystic fibrosis-related medications remains a top concern for people with CF and their families, a recent study found.

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About the CF Foundation | Public Policy | Research Physician Highlights Needs of People with CF in Congressional Roundtable

Dr. Frank Accurso, director of cystic fibrosis clinical research at Children's Hospital Colorado and University of Colorado Denver, participated in a congressional roundtable discussion at National Jewish Health in Denver, Colorado.

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About the CF Foundation | Public Policy | Drug Pipeline CF Foundation Featured at Congressional Hearing on Patients’ Involvement in Drug Development

CF Foundation President and CEO Robert J. Beall, Ph.D. testified today before the House of Representatives' Energy and Commerce Committee at a hearing entitled, “21st Century Cures: Incorporating the Patient Perspective.”

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About the CF Foundation | Public Policy | Advocacy CF Foundation Teen Advocates Share Their CF Stories with Members of Congress

Teen volunteers from 27 states across the country gathered in Washington, D.C., on June 26 to advocate for friends and loved ones who have cystic fibrosis during the Cystic Fibrosis Foundation's sixth annual Teen Advocacy Day.

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About the CF Foundation | Public Policy | Advocacy Volunteer Advocates “March on the Hill” to Educate, Gain Support from Members of Congress

More than 60 CF Foundation volunteers came together in Washington, D.C. to speak with their elected officials on behalf of friends and family members affected by the disease during March on the Hill, the Cystic Fibrosis Foundation's signature annual advocacy event.

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About the CF Foundation | Public Policy | Care Centers Congressional Briefing Showcases CF Foundation Drug Development and Care Center Models

The Cystic Fibrosis Foundation hosted a Congressional briefing on February 11 to discuss the benefits of the Foundation's model of specialized, coordinated care and its innovative strategies for drug development, and how they can serve as an example for other rare, chronic diseases.

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