News and Press Releases
Advocacy | Our Advocacy Work Teens Advocate for the PASTEUR Act as Part of the CF Foundation’s 14th Annual Teen Advocacy Day

More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community. 

| 4 min read
About the CF Foundation | Advocacy CF Foundation Announces New National Advocacy Chairs

Marissa Benchea and Jeremy and Rachel Olimb to lead the Foundation’s volunteer advocacy base into a new chapter of CF

| 5 min read
Advocacy | Our Advocacy Work More Than 160 Advocates Raise Their Voices for PASTEUR Act During March on the Hill

More than 160 people with CF and their loved ones from across the country advocated for a more robust antibiotics pipeline during the CF Foundation's virtual March on the Hill.

| 3 min read
Health Care Reform | Advocacy U.S. Supreme Court Rules on the Affordable Care Act

The Cystic Fibrosis Foundation celebrates the decision issued by the United States Supreme Court in California v. Texas, ultimately protecting the Affordable Care Act. 

| 3 min read
Advocacy | About the CF Foundation CF Foundation Responds to NIH Call for Information on Diversity and Inclusion

The Cystic Fibrosis Foundation recently submitted comments to the National Institutes of Health on improving racial equity, diversity, and inclusion in the biomedical research workforce.

| 2 min read
Advocacy | Our Advocacy Work Nearly 200 Teens Gather Virtually for the Foundation’s 12th Annual Teen Advocacy Day

Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation's Virtual Teen Advocacy Day to advocate for the CF community.

| 3 min read
Advocacy | Our Advocacy Work More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

| 3 min read
Advocacy Circuit Court Rules on ACA in Texas v. United States

On Dec. 18, the Fifth Circuit Court of the United States issued a decision in Texas v. United States, ruling the individual mandate unconstitutional but sending the case back down to the district court for further review about the fate of the entire Affordable Care Act.

| 3 min read
Advocacy Rep. Mark Amodei Announced as New Co-Chair of Congressional CF Caucus

U.S. Rep. Mark Amodei of Nevada will join fellow Rep. Jim McGovern and Sens. Chuck Grassley and Ed Markey in co-chairing the Congressional Cystic Fibrosis Caucus, championing awareness of the rare disease and the Cystic Fibrosis Foundation's search for a cure.

| 3 min read
Advocacy Nearly 200 Volunteers Advocate for Loved Ones During 11th Annual Teen Advocacy Day

Nearly 200 people from across the country -- including teens from 38 states -- came to Washington, D.C., on June 27 to advocate for the needs of their loved ones living with cystic fibrosis during the Cystic Fibrosis Foundation's 11th Annual Teen Advocacy Day.

| 3 min read