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About the CF Foundation | Public Policy | Lung Transplantation CF Foundation Shares Plans to Improve Lung Transplantation at White House Event

Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.

| 2 min read
About the CF Foundation | Public Policy | Advocacy Cystic Fibrosis Foundation Applauds Creation of Cystic Fibrosis Caucus in the U.S. Senate

Senate Caucus will work with House Caucus to raise awareness, advance policies and support research

| 5 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates on Capitol Hill and Participates in White House Precision Medicine Initiative Summit

The Cystic Fibrosis Foundation's tenth annual March on the Hill saw more than 80 volunteer advocates from 34 states convene in Washington, D.C. to speak with their members of Congress about cystic fibrosis and ways that elected officials can support the CF community and our search for a cure.

| 4 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Participates in Precision Medicine Initiative Summit Hosted by the White House

On Feb. 25, members of CF Foundation leadership and advocates from the CF community joined President Obama, National Institutes of Health (NIH) Director Francis S. Collins, Food and Drug Administration (FDA) Commissioner Robert M. Califf, White House staff and other stakeholders at the Precision Medicine Initiative Summit (PMI), hosted by the White House.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Honors Congressional Members with Legislative Champion Awards

On Feb. 24 and 25, the Cystic Fibrosis Foundation presented three Legislative Champion Awards to Senator Ron Wyden (D-Ore.), Senator Orrin Hatch (R-Utah) and Congressman Lloyd Doggett (D-Texas) for their ardent support of the CF community and their sponsorship of S. 139/H.R. 209, the Ensuring Access to Clinical Trials Act.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Celebrates 10 Years of March on the Hill

Feb. 25 will mark the tenth anniversary of the Cystic Fibrosis Foundation's signature advocacy event, March on the Hill. Nearly 75 advocates will come together in Washington, D.C. to meet with their elected officials on behalf of their loved ones, who are living with cystic fibrosis.

| 2 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Congressional Briefing Speaks to the Role of Precision Medicine in Treating CF and Other Diseases

On December 8, The Cystic Fibrosis Foundation, in collaboration with the Congressional Cystic Fibrosis Caucus and its co-chairs, U.S. Reps. James McGovern (D-Mass.) and Tom Marino (R-Pa.), presented a congressional briefing on cystic fibrosis and precision medicine.

| 3 min read
About the CF Foundation | Public Policy | Clinical Trials The Cystic Fibrosis Foundation Celebrates Passage of the Ensuring Access to Clinical Trials Act of 2015

CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases

| 5 min read
About the CF Foundation | Public Policy | Clinical Trials CF Foundation–Championed Bill Passes Senate, then House

The House of Representatives has passed a vote on the Ensuring Access to Clinical Trials Act (EACT), which is now set to go to the President for his signature.

| 2 min read
About the CF Foundation | Public Policy | Clinical Trials Cystic Fibrosis Foundation Provides Expert Testimony to Congress in Support of the Ensuring Access to Clinical Trials Act

Bill Would Remove Barrier to Clinical Research for Rare Diseases by Ensuring that Clinical Trial Participants Don't Lose Critical Health Benefits

| 3 min read