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News and Press Releases
Antibiotics | Advocacy CF Foundation Affirms Support of the Introduction of the PASTEUR Act

Proposed legislation has the potential to revitalize the global marketplace for novel antibiotics, bringing urgently needed medicines for drug-resistant infections to patients.

| 2 min read
Advocacy | Our Advocacy Work CF Foundation’s Statement on ICER’s Revised Evidence Report on Treatments for Cystic Fibrosis

Cost effectiveness analysis must be used carefully and as part of a comprehensive evaluation of the value a treatment, such as highly effective modulators, provide to people living with cystic fibrosis.

| 2 min read
Health Care Reform | Advocacy Declaración de Cystic Fibrosis Foundation sobre planes de triaje respecto al COVID-19

Un diagnóstico de fibrosis quística no debe descalificar a una persona para recibir atención que pueda salvarle la vida.

| 3 min read
Advocacy | Our Advocacy Work The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies

More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.

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Health Care Reform | Advocacy CF Foundation Signs on to Amicus Brief in Legal Challenge to Short-Term Health Insurance Rule

The Cystic Fibrosis Foundation has joined 11 other patient groups in filing an amicus brief to challenge the short-term, limited-duration health insurance rule, which threatens access to adequate, affordable coverage for people with cystic fibrosis.

| 3 min read
Health Care Reform | Advocacy | Insurance 27 Patient Groups Express Disappointment in Final Rule on Short-Term, Limited-Duration Insurance Plans

Responding to the U.S. Department of Health and Human Services final rule on short-term, limited-duration insurance plans, the Cystic Fibrosis Foundation joined 26 other nonpartisan patient and consumer groups to voice concern that these plans will split the market and jeopardize access to affordable, adequate health care for people living with pre-existing conditions.

| 3 min read
Advocacy CF Foundation Responds to Justice Department Decision

The Department of Justice's decision to no longer defend critical provisions of the Affordable Care Act (ACA) risks health insurance coverage for people with cystic fibrosis and other pre-existing conditions.

| 2 min read
Advocacy | Insurance 17 Patient Advocacy Organizations: Congress Must Act to Stabilize Insurance Markets After Repealing Individual Mandate

A group of nonpartisan patient and consumer organizations issued a statement after passage of the Tax Cuts and Jobs Act.

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Health Care Reform | Advocacy | Our Advocacy Work Ten Patient Advocacy Organizations Applaud Committee Focus on Market Stabilization

The organizations urge continued protections for patients.

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Health Care Reform | Advocacy | Our Advocacy Work Twelve National Patient Advocacy Organizations Urge Senate to Vote ‘No’ on Advancing ACA Repeal

Patient and provider groups urge safeguard for the health and lives of millions of Americans with a bipartisan approach to reform.

| 2 min read