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Health Care Reform | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day to Fight for Adequate, Affordable Care

As part of the Cystic Fibrosis Foundation's ninth annual Teen Advocacy Day, 162 advocates from 38 states met with elected officials in Washington, D.C., to tell their stories and make sure the cystic fibrosis community is heard in ongoing health care reform discussions.

| 3 min read
Health Care Reform | Advocacy | Our Advocacy Work Senate Health Care Bill Fails to Adequately Protect People with Cystic Fibrosis

Today, the U.S. Senate released its version of the health care reform bill, titled the Better Care Reconciliation Act, and in response, the Cystic Fibrosis Foundation affirmed its opposition to the legislation.

| 3 min read
Advocacy | Our Advocacy Work 120 Patient Organizations Call on Senate to Defend Medicaid

The letter to Senators Mitch McConnell and Orrin Hatch highlights the critical role that Medicaid plays in helping patients and consumers access adequate, affordable health insurance.

| 2 min read
Advocacy New CBO Score Confirms the American Health Care Act Puts Patients Last

Eight Patient/Consumer Groups Urge Senate to Start Over

| 4 min read
Advocacy Cystic Fibrosis Foundation Response to the House Passage of the American Health Care Act

The legislation would impact the health care coverage of millions of Americans, including people living with cystic fibrosis.

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Advocacy | Our Advocacy Work Leading Patient Advocacy Groups Remain Opposed to the American Health Care Act

Eight organizations issue statement criticizing Upton Amendment.

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Health Care Reform | Advocacy House of Representatives Passes Health Care Reform Legislation

The U.S. House of Representatives has passed the American Health Care Act (AHCA), legislation that fails to adequately protect people living with cystic fibrosis.

| 3 min read
Advocacy | Our Advocacy Work Leading Patient Advocacy Groups Stand Together to Oppose American Health Care Act

Legislation would leave millions with inadequate, unaffordable care as they battle chronic and other major health conditions.  

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Advocacy Cystic Fibrosis Foundation Participates in HHS Roundtable on Drug Pricing

Yesterday, the Cystic Fibrosis Foundation met with HHS Secretary Tom Price and seven other patient advocacy groups to discuss drug pricing and the needs of the CF community. President Trump has identified drug pricing as a top priority, and this meeting was the start of a listening tour by the Secretary.

| 2 min read
Health Care Reform | Advocacy | Insurance Cystic Fibrosis Foundation Joins 86 Organizations to Call on Congress to Protect Medicaid

On March 20, the Cystic Fibrosis Foundation and 86 other organizations called on Congress to protect Medicaid, a critical source of coverage for people in the cystic fibrosis community. 

| 2 min read