News

News and Press Releases
Our Advocacy Work CF Foundation Urges Congress to Prioritize Patients in PBM Reform

Centering the patient experience is the only way to successfully reform pharmacy benefit manager practices

| 4 min read
About the CF Foundation | Our Advocacy Work Organizations Focused on Fight Against Superbugs Celebrate Reintroduction of the PASTEUR Act

Groups urging need for revitalizing antimicrobial development call for passage of the bill this year

| 3 min read
Advocacy | Our Advocacy Work CF Foundation’s Statement on ICER’s Revised Evidence Report on Treatments for Cystic Fibrosis

Cost effectiveness analysis must be used carefully and as part of a comprehensive evaluation of the value a treatment, such as highly effective modulators, provide to people living with cystic fibrosis.

| 2 min read
Our Advocacy Work | Infection Prevention and Control | Germs Cystic Fibrosis Foundation Statement on COVID-19 Triage Plans

A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.

| 2 min read
Advocacy | Our Advocacy Work The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies

More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.

| 2 min read
Our Advocacy Work Patient Groups Decry Administration’s Latest Effort to Undermine Quality and Affordable Health Care

Responding to the Trump administration's recent decision to freeze risk adjustment payments, the Cystic Fibrosis Foundation joined 13 other nonpartisan patient groups to voice disappointment in the latest administrative efforts to undermine adequate and affordable health care for people with pre-existing conditions. 

| 3 min read
Health Care Reform | Advocacy | Our Advocacy Work Ten Patient Advocacy Organizations Applaud Committee Focus on Market Stabilization

The organizations urge continued protections for patients.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work Twelve National Patient Advocacy Organizations Urge Senate to Vote ‘No’ on Advancing ACA Repeal

Patient and provider groups urge safeguard for the health and lives of millions of Americans with a bipartisan approach to reform.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work New CBO Score Confirms Senate Health Care Bill Still Fails to Protect Patients

Ten patient and provider groups, representing millions of Americans, issued the following statement in response to the release of the nonpartisan Congressional Budget Office's (CBO) scores of two pieces of health care reform legislation currently being considered by the U.S. Senate.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work Twelve Non-Partisan Patient and Provider Groups Urge Senate to Vote ‘No’ on Skinny Repeal Bill

Patient and provider groups urge the Senate to work together in a bipartisan fashion to ensure that Americans have access to affordable health care. 

| 2 min read