News

News and Press Releases
About the CF Foundation | Research Scientists Discuss Challenges to Repair or Replace Genes at CF Research Conference

The Cystic Fibrosis Foundation invited more than 100 scientists to its research conference in Savannah, Ga., last month to discuss recent advancements in gene therapy, gene editing and stem-cell biology and how these new technologies could be applied to finding a one-time cure for cystic fibrosis.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day and to Mark Launch of the Senate CF Caucus

As part of the Cystic Fibrosis Foundation's eighth annual Teen Advocacy Day, more than 75 teens from 35 states met with elected officials in Washington, D.C., on June 23 and advocated on behalf of their loved ones with cystic fibrosis.

| 3 min read
About the CF Foundation | Public Policy | Lung Transplantation CF Foundation Shares Plans to Improve Lung Transplantation at White House Event

Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.

| 2 min read
About the CF Foundation CF Foundation President Preston Campbell Featured in BBB Video Blog Series

As part of its Building Trust Video series, the Better Business Bureau's (BBB) Wise Giving Alliance is featuring an interview with Preston W. Campbell, III, M.D., president and CEO of the Cystic Fibrosis Foundation.

| 1 min read
About the CF Foundation Cystic Fibrosis Foundation Window Display in Rockefeller Center Showcases the Challenges and Progress in Fighting CF

EHE International Donates Premier Window Display for National CF Awareness Month in May

| 3 min read
About the CF Foundation Cystic Fibrosis Foundation Appoints Marc Ginsky as Chief Operating Officer

The Cystic Fibrosis Foundation announced the appointment of Marc Ginsky as executive vice president and chief operating officer. Mr. Ginsky will oversee the Foundation's day-to-day operations with a focus on field management, information technology and the Foundation's infrastructure.

| 4 min read
About the CF Foundation | In Memoriam Mary Weiss, Trailblazer in the Fight Against CF, Dies at 77

As a mother of three sons with cystic fibrosis, Mary along with her husband, Harry, was determined to do all she could to find a cure.

| 4 min read
About the CF Foundation | Public Policy | Advocacy Cystic Fibrosis Foundation Applauds Creation of Cystic Fibrosis Caucus in the U.S. Senate

Senate Caucus will work with House Caucus to raise awareness, advance policies and support research

| 5 min read
About the CF Foundation | Get Involved CF Foundation Recognizes Contributions of Four CF Community Leaders at the 2016 Volunteer Leadership Conference

On Mar. 11, the Cystic Fibrosis Foundation presented the Alex, Jena and Dream Big Awards to leaders in the CF community for their dedication to the Foundation's mission of finding a cure.

| 4 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates on Capitol Hill and Participates in White House Precision Medicine Initiative Summit

The Cystic Fibrosis Foundation's tenth annual March on the Hill saw more than 80 volunteer advocates from 34 states convene in Washington, D.C. to speak with their members of Congress about cystic fibrosis and ways that elected officials can support the CF community and our search for a cure.

| 4 min read