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About the CF Foundation | Public Policy | Advocacy Volunteers from 38 States Meet with Elected Officials to Advocate for People with CF

Advocating on behalf of friends and family members with cystic fibrosis, more than 120 CF Foundation volunteers came together in the nation's capital to speak with their elected officials on behalf of friends and family members affected by the disease.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Meets with Private Insurers, Medicaid Officials and Other Health Experts to Help People with CF Access High Quality Care

At a meeting hosted by the Cystic Fibrosis Foundation, private insurers, state Medicaid officials, care center providers, health experts and people with CF and their families came together to discuss innovative ways to continue improving high quality CF care on February 4.

| 2 min read
About the CF Foundation | Public Policy Medical Student with CF to Join Michelle Obama at State of the Union Address

William Elder, Jr., a medical student with cystic fibrosis and long-time advocate for the CF community, has been invited to sit with First Lady Michelle Obama at tonight's State of the Union address. The White House invitation highlights the momentum and progress toward finding a cure for this devastating disease.

| 2 min read
About the CF Foundation | Public Policy | Clinical Trials Legislation Introduced to Protect Access to Clinical Trials for People with CF

Legislation introduced today will help more people with cystic fibrosis, and other rare diseases, participate in clinical trials without fear of losing important benefits or health coverage. The bill is sponsored by a bipartisan group of senators and legislators.

| 2 min read