News and Press Releases
About the CF Foundation | Public Policy | Advocacy CF Advocates Advance Research and Preserve Access to Care in 2011

In 2011, Cystic Fibrosis Foundation advocates worked to advance cystic fibrosis research and help ensure access to treatment and care for people with the disease.

Dec. 22, 2011 | 2 min read
About the CF Foundation | Public Policy | Research Influential Congressional Committee Recognizes the Importance of Cystic Fibrosis Research

In a strong show of support for the CF community, the U.S. Senate Appropriations Committee recently expressed the importance of innovative cystic fibrosis research in a spending bill, which is part of the federal budget under consideration right now in Congress.

Oct. 10, 2011 | 2 min read
About the CF Foundation | Advocacy | Public Policy Teens Lobby Congress to Raise Awareness of Cystic Fibrosis

Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

June 22, 2011 | 2 min read
Public Policy | Drug Pipeline | About the CF Foundation CF Foundation Drug Development Model Showcased at Congressional Briefing

The Cystic Fibrosis Foundation's successful business model was at the center of a congressional briefing in Washington, D.C., today, which focused on strategies for jump-starting drug development for rare diseases.

June 14, 2011 | 2 min read
About the CF Foundation | Public Policy | Clinical Trials Improving Access to Clinical Trials Act Takes Effect

A new law that allows patients with rare diseases to participate in clinical trials without losing eligibility for public health care benefits went into effect yesterday. The bill, known as the “Improving Access to Clinical Trials Act” (IACT), was championed by the Cystic Fibrosis Foundation and signed into law in October 2010.

April 4, 2011 | 2 min read