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About the CF Foundation | Public Policy | Lung Transplantation CF Foundation Shares Plans to Improve Lung Transplantation at White House Event

Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.

| 2 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates on Capitol Hill and Participates in White House Precision Medicine Initiative Summit

The Cystic Fibrosis Foundation's tenth annual March on the Hill saw more than 80 volunteer advocates from 34 states convene in Washington, D.C. to speak with their members of Congress about cystic fibrosis and ways that elected officials can support the CF community and our search for a cure.

| 4 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Participates in Precision Medicine Initiative Summit Hosted by the White House

On Feb. 25, members of CF Foundation leadership and advocates from the CF community joined President Obama, National Institutes of Health (NIH) Director Francis S. Collins, Food and Drug Administration (FDA) Commissioner Robert M. Califf, White House staff and other stakeholders at the Precision Medicine Initiative Summit (PMI), hosted by the White House.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Honors Congressional Members with Legislative Champion Awards

On Feb. 24 and 25, the Cystic Fibrosis Foundation presented three Legislative Champion Awards to Senator Ron Wyden (D-Ore.), Senator Orrin Hatch (R-Utah) and Congressman Lloyd Doggett (D-Texas) for their ardent support of the CF community and their sponsorship of S. 139/H.R. 209, the Ensuring Access to Clinical Trials Act.

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About the CF Foundation | Public Policy | Advocacy CF Foundation Celebrates 10 Years of March on the Hill

Feb. 25 will mark the tenth anniversary of the Cystic Fibrosis Foundation's signature advocacy event, March on the Hill. Nearly 75 advocates will come together in Washington, D.C. to meet with their elected officials on behalf of their loved ones, who are living with cystic fibrosis.

| 2 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Congressional Briefing Speaks to the Role of Precision Medicine in Treating CF and Other Diseases

On December 8, The Cystic Fibrosis Foundation, in collaboration with the Congressional Cystic Fibrosis Caucus and its co-chairs, U.S. Reps. James McGovern (D-Mass.) and Tom Marino (R-Pa.), presented a congressional briefing on cystic fibrosis and precision medicine.

| 3 min read
About the CF Foundation | Public Policy | Clinical Trials CF Foundation–Championed Bill Passes Senate, then House

The House of Representatives has passed a vote on the Ensuring Access to Clinical Trials Act (EACT), which is now set to go to the President for his signature.

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About the CF Foundation | Public Policy | Clinical Trials CF Foundation Supports EACT with Testimony to Congress

Cystic Fibrosis Foundation Vice President of Therapeutics Development Dr. Michael Boyle testified today at a hearing in front of the House Energy and Commerce Committee's Subcommittee on Health. He urged members to support H.R. 209, the Ensuring Access to Clinical Trials Act (EACT), which would make permanent a law enabling people to participate in clinical trials without the fear of losing critical benefits.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Teens Advocate on the Hill

A group of 62 enthusiastic teen advocates gathered in Washington, D.C. on June 25 to bring awareness of cystic fibrosis to Capitol Hill. During the 7th Annual Cystic Fibrosis Foundation Teen Advocacy Day, the teens highlighted the vital role that the CF Foundation plays in finding a cure for this life-threatening genetic disease. 

| 2 min read
About the CF Foundation | Public Policy | Advocacy White House Honors Advocate with Cystic Fibrosis

On July 8, the White House honored 30-year-old Emily Kramer-Golinkoff as a “Champion of Change” for her role in advocating for the integration of precision medicine into the U.S. healthcare system.

| 3 min read