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News and Press Releases
About the CF Foundation | Public Policy | Advocacy CF Foundation Congressional Briefing Speaks to the Role of Precision Medicine in Treating CF and Other Diseases

On December 8, The Cystic Fibrosis Foundation, in collaboration with the Congressional Cystic Fibrosis Caucus and its co-chairs, U.S. Reps. James McGovern (D-Mass.) and Tom Marino (R-Pa.), presented a congressional briefing on cystic fibrosis and precision medicine.

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Research | Nutrition UPDATE: FDA Approves Expanded Use of Enzyme Device for Children

The U.S. Food and Drug Administration has approved a device, called RELiZORB®, that helps break down beneficial fats in supplemental nutrition provided via G-tubes.

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About the CF Foundation | CFTR Modulators CF Therapy Orkambi Approved in Europe

The European Commission has approved the cystic fibrosis drug Orkambi® for people with two copies of the F508del mutation ages 12 and older in the European Union.

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Research Cystic Fibrosis Foundation Therapeutics Announces $7.5 Million Award to Discover New Therapies for Nonsense Mutations

A $7.5 million research award will go to Southern Research to identify potential new drugs for people with rare CF mutations, known as nonsense mutations, Cystic Fibrosis Foundation Therapeutics Inc. announced today.

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North American CF Conference Cystic Fibrosis Foundation Congratulates Recipients of 2015 Research and Care Awards

At the 2015 North American Cystic Fibrosis Conference (NACFC) held on Oct. 8-10 in Phoenix, Arizona, the Cystic Fibrosis Foundation announced the recipients of seven awards given to members of the research and medical community whose achievements have helped advance cystic fibrosis research and care. 

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New Guidelines Released for the Screening and Treatment of Depression and Anxiety

The Cystic Fibrosis Foundation and the European Cystic Fibrosis Society have collaborated to create new care guidelines for the screening and treatment of depression and anxiety in people with cystic fibrosis and their family caregivers. 

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About the CF Foundation | North American CF Conference The 29th Annual North American CF Conference Kicks Off in Phoenix

Today, more than 4,000 cystic fibrosis research scientists, clinicians and caregivers are gathering in Phoenix for the 29th Annual North American Cystic Fibrosis Conference (NACFC) in the largest collaborative forum of its kind. 

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About the CF Foundation | Patient Assistance CF Foundation to Transition Enrollees in its Patient Assistance Foundation to HealthWell Foundation

HealthWell to offer co-pay assistance for CF-specific, FDA-approved drugs including prescribed vitamins and supplements.

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About the CF Foundation | Public Policy | Clinical Trials CF Foundation–Championed Bill Passes Senate, then House

The House of Representatives has passed a vote on the Ensuring Access to Clinical Trials Act (EACT), which is now set to go to the President for his signature.

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About the CF Foundation | Public Policy | Clinical Trials CF Foundation Supports EACT with Testimony to Congress

Cystic Fibrosis Foundation Vice President of Therapeutics Development Dr. Michael Boyle testified today at a hearing in front of the House Energy and Commerce Committee's Subcommittee on Health. He urged members to support H.R. 209, the Ensuring Access to Clinical Trials Act (EACT), which would make permanent a law enabling people to participate in clinical trials without the fear of losing critical benefits.

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