News and Press Releases
Health Care Reform | Advocacy CF Foundation Responds to Court Decision to Overturn the ACA

On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.

| 3 min read
Get Involved | Fundraising Golf Enthusiasts and Celebrities Raise $750K at the 24th Annual Ultimate Golf Experience

The 24th annual Ultimate Golf Experience brought together a standout array of entertainers, guests, and friends of the Cystic Fibrosis Foundation for a premier golfing event to raise funds in the fight against cystic fibrosis.

| 3 min read
Research | Drug Pipeline | Clinical Trials Positive Late Stage Study Results for Next-Generation, Triple-Combination Modulator

Today, Vertex Pharmaceuticals Inc. released the initial Phase 3 clinical trial data for one of two next-generation, triple-combination modulators currently being tested.

| 3 min read
Research Cystic Fibrosis Foundation Commits $100 Million to Infection Research

Funding will support improved detection, diagnosis, prevention, and treatment of infections related to cystic fibrosis.

| 4 min read
Health Care Reform The Trump Administration Announces Changes to Health Insurance Markets

President Donald Trump signed an executive order on health care that could weaken patient protections. He also announced a plan to stop paying cost-sharing reduction (CSR) subsidies to health insurance companies. Both decisions could negatively affect people with cystic fibrosis.

| 3 min read
Get Involved CF Foundation Announces 2018 Impact Grant Recipients

Recipients include eight innovative programs from around the country that serve the CF community.

| 4 min read
Cystic Fibrosis Foundation Awards Grants to Eight Community Programs

2018 Impact Grants provide funding for efforts that support people with cystic fibrosis and their families.

| 5 min read
Patient Assistance Support for Those Impacted by Hurricane Michael

The Cystic Fibrosis Foundation is offering two vital resources to support CF families who may be affected by Hurricane Michael.

| 2 min read
Health Care Reform | Advocacy CF Foundation Signs on to Amicus Brief in Legal Challenge to Short-Term Health Insurance Rule

The Cystic Fibrosis Foundation has joined 11 other patient groups in filing an amicus brief to challenge the short-term, limited-duration health insurance rule, which threatens access to adequate, affordable coverage for people with cystic fibrosis.

| 3 min read
In the Spotlight The Warren Alpert Foundation and Harvard Medical School Recognize CF Research Pioneers

On Oct. 4, the Warren Alpert Foundation honored five CF scientists, including Dr. Francis Collins, for their trailblazing work in CF research. The Foundation received special acknowledgement for our role in driving this progress, marking the first time that an organization has been recognized by the Alpert Foundation.

| 4 min read