News

News and Press Releases
About the CF Foundation | Public Policy | Clinical Trials Legislation Introduced to Protect Access to Clinical Trials for People with CF

Legislation introduced today will help more people with cystic fibrosis, and other rare diseases, participate in clinical trials without fear of losing important benefits or health coverage. The bill is sponsored by a bipartisan group of senators and legislators.

| 2 min read
About the CF Foundation | Clinical Trials | Clinician Resources New CFF Program Helps Bring More Research Staff to Clinical Trials Network

The Cystic Fibrosis Foundation has launched a new program that will fund 60 additional research coordinators to help speed the progress of CF clinical trials throughout its Therapeutics Development Network (TDN).

| 2 min read
About the CF Foundation | CFTR Modulators | Clinical Trials Letter to the Community on Exciting Vertex Clinical Trials Results

This morning, Vertex Pharmaceuticals announced the results from the Phase 3 clinical trials of ivacaftor (Kalydeco™) and lumacaftor (VX-809) in people with two copies of the F508del mutation.

| 4 min read
About the CF Foundation | Public Policy | Clinical Trials Improving Access to Clinical Trials Act Takes Effect

A new law that allows patients with rare diseases to participate in clinical trials without losing eligibility for public health care benefits went into effect yesterday. The bill, known as the “Improving Access to Clinical Trials Act” (IACT), was championed by the Cystic Fibrosis Foundation and signed into law in October 2010.

| 2 min read
About the CF Foundation | Public Policy | Clinical Trials Michigan Teens Give U.S. Senator a Glimpse of Life with CF

This month, 15-year-old Molly Bonnell and her sister Emily, 13, who have cystic fibrosis, discovered how easy it is to make their voices heard in Congress -- without leaving their living room.

| 2 min read