News

News and Press Releases
CF Foundation Establishes Health Equity Awards to Advance Research Toward Optimal Health Outcomes

The Foundation is committed to improving health outcomes for people with cystic fibrosis from underrepresented groups by supporting research projects advancing our understanding of barriers to health equity.

| 5 min read
In Memoriam CF Foundation Honors the Legacy of Joe O’Donnell

The Cystic Fibrosis Foundation mourns the passing of long-standing CF community champion and philanthropic leader who helped to raise more than $500 million toward the CF cause.

| 4 min read
Our Research Approach CF Foundation Invests up to $5M in Clarametyx Biosciences to Develop a New Anti-Bacterial Therapy 

Clarametyx’s novel therapy aims to disrupt bacterial biofilms, one of the primary causes of antibiotic resistance, thereby potentially increasing the effectiveness of existing treatments in fighting a wide range of bacterial infections, including those commonly affecting people with CF.

| 2 min read
Public Policy CF Foundation Grateful for Continued Access to Trikafta in Colorado After Prescription Drug Affordability Board’s Ruling

The Board’s review put Coloradans with CF at the center of the discussion, helping to preserve vital access to Trikafta®.

| 2 min read
Our Research Approach CF Foundation Invests Up to $3 Million in ViaNautis Bio to Explore a New Method to Deliver Genetic Therapies to People With CF

ViaNautis’ non-viral delivery mechanism, polyNaut®, aims to improve delivery of genetic therapies to the cells of people with CF. 

| 2 min read
About the CF Foundation | Diversity, Equity, and Inclusion CF Foundation Formalizes Final Set of Recommendations From External Racial Justice Working Group

The Foundation, in collaboration with external community advisors, finalizes recommendations in area of Community to help foster more inclusion and improve the experiences of Black people living with and impacted by cystic fibrosis.

| 4 min read
Diversity, Equity, and Inclusion | Our Research Approach CF Foundation Awards Advance Improvements in CF Newborn Screening

Since 2011, the Foundation has awarded $2.5 million across 35 different projects to improve cystic fibrosis newborn screening across the country.

| 4 min read
Get Involved Cystic Fibrosis Foundation Awards 2023 Impact Grants

To date, the CF Foundation has funded more than $1 million to programs created by and for the CF community.

| 5 min read
Advocacy | Antibiotics Adult with CF Provides Testimony at Congressional Hearing on the Impact of Antimicrobial Resistance 

Melanie Lawrence, an adult with cystic fibrosis, was selected to testify before a Senate Health, Education, Labor and Pensions subcommittee regarding the impact of antimicrobial resistance on patients who face heightened risk of infections, like those with CF.

| 3 min read
Advocacy | Our Advocacy Work Teens Advocate on Capitol Hill During the Foundation’s 15th Annual Teen Advocacy Day

More than 60 teens from across the country — almost half of whom live with cystic fibrosis — advocated for support of the PASTEUR Act.

| 3 min read