News and Press Releases
Advocacy The CF Foundation’s 16th Annual Teen Advocacy Day Empowers Teens to Make Their Voice Heard

More than 70 teens from across the country — a third of whom live with cystic fibrosis — urged their members of Congress to pass the PASTEUR Act before the end of the year.

July 2, 2024 | 4 min read
Care Team Cystic Fibrosis Community Perspectives Influence Future of CF Care Model

Community feedback highlights the importance of CF care teams, in-person CF care, and telehealth.

May 7, 2024 | 4 min read
Patient Registry CF Foundation Adapts Registry Reporting to New Race-Neutral Standards

Revised approach to lung function reporting is shown to be more scientifically accurate and may reduce health disparities.

April 2, 2024 | 5 min read
Our Advocacy Work Nearly 350 Advocates Urge Congressional Action During 17th Annual March on the Hill

This year’s program marked the largest in-person advocacy event in the Foundation’s history.

March 19, 2024 | 3 min read
Our Research Approach Cystic Fibrosis Foundation Invests an Additional $5 Million in BiomX

Funding will support a Phase 2b trial of phage therapy for chronic Pseudomonas aeruginosa lung infections.

March 18, 2024 | 2 min read
Our Research Approach Cystic Fibrosis Foundation Invests More Than $6.6 Million in Additional Funding in Sionna Therapeutics

The funding will help support research into the development of potential new modulator therapies for people with cystic fibrosis with an F508del mutation.

March 7, 2024 | 2 min read
About the CF Foundation Bruce Marshall, Chief Medical Officer, to Retire From the CF Foundation

A transformative leader for more than two decades, Marshall will transition to advisory role

March 6, 2024 | 3 min read
CF Foundation Establishes Health Equity Awards to Advance Research Toward Optimal Health Outcomes

The Foundation is committed to improving health outcomes for people with cystic fibrosis from underrepresented groups by supporting research projects advancing our understanding of barriers to health equity.

Jan. 24, 2024 | 5 min read
In Memoriam CF Foundation Honors the Legacy of Joe O’Donnell

The Cystic Fibrosis Foundation mourns the passing of long-standing CF community champion and philanthropic leader who helped to raise more than $500 million toward the CF cause.

Jan. 8, 2024 | 4 min read
Our Research Approach CF Foundation Invests up to $5M in Clarametyx Biosciences to Develop a New Anti-Bacterial Therapy 

Clarametyx’s novel therapy aims to disrupt bacterial biofilms, one of the primary causes of antibiotic resistance, thereby potentially increasing the effectiveness of existing treatments in fighting a wide range of bacterial infections, including those commonly affecting people with CF.

Jan. 5, 2024 | 2 min read