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About the CF Foundation | Public Policy | Advocacy Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day and to Mark Launch of the Senate CF Caucus

As part of the Cystic Fibrosis Foundation's eighth annual Teen Advocacy Day, more than 75 teens from 35 states met with elected officials in Washington, D.C., on June 23 and advocated on behalf of their loved ones with cystic fibrosis.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates on Capitol Hill and Participates in White House Precision Medicine Initiative Summit

The Cystic Fibrosis Foundation's tenth annual March on the Hill saw more than 80 volunteer advocates from 34 states convene in Washington, D.C. to speak with their members of Congress about cystic fibrosis and ways that elected officials can support the CF community and our search for a cure.

| 4 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Participates in Precision Medicine Initiative Summit Hosted by the White House

On Feb. 25, members of CF Foundation leadership and advocates from the CF community joined President Obama, National Institutes of Health (NIH) Director Francis S. Collins, Food and Drug Administration (FDA) Commissioner Robert M. Califf, White House staff and other stakeholders at the Precision Medicine Initiative Summit (PMI), hosted by the White House.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Honors Congressional Members with Legislative Champion Awards

On Feb. 24 and 25, the Cystic Fibrosis Foundation presented three Legislative Champion Awards to Senator Ron Wyden (D-Ore.), Senator Orrin Hatch (R-Utah) and Congressman Lloyd Doggett (D-Texas) for their ardent support of the CF community and their sponsorship of S. 139/H.R. 209, the Ensuring Access to Clinical Trials Act.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Celebrates 10 Years of March on the Hill

Feb. 25 will mark the tenth anniversary of the Cystic Fibrosis Foundation's signature advocacy event, March on the Hill. Nearly 75 advocates will come together in Washington, D.C. to meet with their elected officials on behalf of their loved ones, who are living with cystic fibrosis.

| 2 min read