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News and Press Releases
Our Advocacy Work CF Foundation Advocates to Protect Needs of People With CF in Post-Pandemic Medicaid Redeterminations

Medicaid beneficiaries are encouraged to update their information with Medicaid to ensure continued coverage.

| 5 min read
About the CF Foundation | Our Advocacy Work Organizations Focused on Fight Against Superbugs Celebrate Reintroduction of the PASTEUR Act

Groups urging need for revitalizing antimicrobial development call for passage of the bill this year

| 3 min read
Advocacy | Our Advocacy Work More Than 175 Advocates Urge Action During 16th Annual March on the Hill

During the annual event, volunteers advocated for the PASTEUR Act and the HELP Copays Act, two bipartisan pieces of legislation that could have substantial, positive impact on the CF community.

| 3 min read
Advocacy | Our Advocacy Work Teens Advocate for the PASTEUR Act as Part of the CF Foundation’s 14th Annual Teen Advocacy Day

More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community. 

| 4 min read
Advocacy | Our Advocacy Work More Than 160 Advocates Raise Their Voices for PASTEUR Act During March on the Hill

More than 160 people with CF and their loved ones from across the country advocated for a more robust antibiotics pipeline during the CF Foundation's virtual March on the Hill.

| 3 min read
Advocacy | Our Advocacy Work Nearly 200 Teens Gather Virtually for the Foundation’s 12th Annual Teen Advocacy Day

Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation's Virtual Teen Advocacy Day to advocate for the CF community.

| 3 min read
Advocacy | Our Advocacy Work CF Foundation’s Statement on ICER’s Revised Evidence Report on Treatments for Cystic Fibrosis

Cost effectiveness analysis must be used carefully and as part of a comprehensive evaluation of the value a treatment, such as highly effective modulators, provide to people living with cystic fibrosis.

| 2 min read
Our Advocacy Work | Infection Prevention and Control | Germs Cystic Fibrosis Foundation Statement on COVID-19 Triage Plans

A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.

| 2 min read
Advocacy | Our Advocacy Work The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies

More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.

| 2 min read
Advocacy | Our Advocacy Work More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

| 3 min read