News

News and Press Releases
About the CF Foundation | Public Policy | Advocacy Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

| 3 min read
About the CF Foundation | Get Involved Foundation Announces 2017 Volunteer Leadership Conference Co-Chairs

Ginger Birnbaum and Mike Beatty lead efforts in Dallas for banner conference -- "teamMATEs for a Cure.”

| 2 min read
About the CF Foundation | NACFC | Research Cystic Fibrosis Foundation Congratulates Recipients of 2016 Research and Care Awards

At the 2016 North American Cystic Fibrosis Conference (NACFC) held on Oct. 27-29 in Orlando, Fla., the Cystic Fibrosis Foundation announced the recipients of seven awards given to members of the research and medical community whose achievements have helped advance cystic fibrosis research and care.

| 4 min read
About the CF Foundation | NACFC Videos of NACFC 2016 Plenary Sessions Are Available Online

More than 4,600 cystic fibrosis researchers and health care professionals gathered Oct. 27 - 29 in Orlando for the 30th annual North American Cystic Fibrosis Conference. Recordings of the three plenary sessions are now available online.

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About the CF Foundation | Fundraising Actor-comedian Garry Shandling Makes a Difference for CF Community

Garry Shandling leaves a legacy gift to the Foundation in honor of his late brother, who had cystic fibrosis.

| 3 min read
About the CF Foundation | CFTR Modulators | Genetic Therapies FDA Expands Use of Orkambi® to Children Ages 6 to 11 With CF

The U.S. Food and Drug Administration (FDA) approved the use of lumacaftor/ivacaftor (Orkambi®) today for children with cystic fibrosis ages 6 to 11, who have two copies of the F508del mutation.

| 2 min read
About the CF Foundation | Public Policy | Lung Transplantation Community Liaison Piper Beatty Participates in FDA Meeting on Organ Transplantation

Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.

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About the CF Foundation | Public Policy | Insurance Archived Webinar: Disability and Cystic Fibrosis

On Thursday, September 22, experts from the Social Security Administration joined the CF community for a conversation on disability eligibility and the application process.

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Research CF Foundation Officially Opens One-of-a-Kind Research Lab

The lab will use the latest scientific advances -- including stem cell research and gene editing -- to accelerate new treatments for cystic fibrosis.

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About the CF Foundation | Cystic Fibrosis Foundation Therapeutics (CFFT) CF Foundation Opens One-of-a-Kind Research Lab

Expanded Research Lab to Apply Latest Scientific Advances -- Including Stem Cell Research and Gene Editing -- to Accelerate New Treatments for CF

| 3 min read