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News and Press Releases
About the CF Foundation | Public Policy | Advocacy CF Foundation Congressional Briefing Speaks to the Role of Precision Medicine in Treating CF and Other Diseases

On December 8, The Cystic Fibrosis Foundation, in collaboration with the Congressional Cystic Fibrosis Caucus and its co-chairs, U.S. Reps. James McGovern (D-Mass.) and Tom Marino (R-Pa.), presented a congressional briefing on cystic fibrosis and precision medicine.

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About the CF Foundation | Public Policy | Clinical Trials CF Foundation–Championed Bill Passes Senate, then House

The House of Representatives has passed a vote on the Ensuring Access to Clinical Trials Act (EACT), which is now set to go to the President for his signature.

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About the CF Foundation | Public Policy | Clinical Trials CF Foundation Supports EACT with Testimony to Congress

Cystic Fibrosis Foundation Vice President of Therapeutics Development Dr. Michael Boyle testified today at a hearing in front of the House Energy and Commerce Committee's Subcommittee on Health. He urged members to support H.R. 209, the Ensuring Access to Clinical Trials Act (EACT), which would make permanent a law enabling people to participate in clinical trials without the fear of losing critical benefits.

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About the CF Foundation | Public Policy | Advocacy CF Teens Advocate on the Hill

A group of 62 enthusiastic teen advocates gathered in Washington, D.C. on June 25 to bring awareness of cystic fibrosis to Capitol Hill. During the 7th Annual Cystic Fibrosis Foundation Teen Advocacy Day, the teens highlighted the vital role that the CF Foundation plays in finding a cure for this life-threatening genetic disease. 

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About the CF Foundation | Public Policy | Advocacy White House Honors Advocate with Cystic Fibrosis

On July 8, the White House honored 30-year-old Emily Kramer-Golinkoff as a “Champion of Change” for her role in advocating for the integration of precision medicine into the U.S. healthcare system.

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About the CF Foundation | Public Policy | Health Care Reform Affordable Care Act Supreme Court Decision Impacts People with CF

Today, the Supreme Court decided to uphold the Affordable Care Act, allowing individuals who purchase health insurance on exchanges to continue receiving premium subsidies.

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About the CF Foundation | Public Policy | Advocacy CF Foundation Announces New National Advocacy Chairs

The Cystic Fibrosis Foundation is proud to announce our new National Advocacy Chairs, Melissa Shiffman from New York, NY, and Rebecca Schroeder from Coeur D'Alene, ID. Peter Barry, who, along with his wife Amy, has served as the Foundation's National Advocacy Chair for the last five years, announced the news at the Foundation's annual March on the Hill advocacy event on March 19.

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About the CF Foundation | Public Policy | Advocacy Volunteers from 38 States Meet with Elected Officials to Advocate for People with CF

Advocating on behalf of friends and family members with cystic fibrosis, more than 120 CF Foundation volunteers came together in the nation's capital to speak with their elected officials on behalf of friends and family members affected by the disease.

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About the CF Foundation | Public Policy | Advocacy CF Foundation Meets with Private Insurers, Medicaid Officials and Other Health Experts to Help People with CF Access High Quality Care

At a meeting hosted by the Cystic Fibrosis Foundation, private insurers, state Medicaid officials, care center providers, health experts and people with CF and their families came together to discuss innovative ways to continue improving high quality CF care on February 4.

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About the CF Foundation | Public Policy Medical Student with CF to Join Michelle Obama at State of the Union Address

William Elder, Jr., a medical student with cystic fibrosis and long-time advocate for the CF community, has been invited to sit with First Lady Michelle Obama at tonight's State of the Union address. The White House invitation highlights the momentum and progress toward finding a cure for this devastating disease.

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