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Research | Drug Pipeline Drug Shows Promise in Reducing Inflammation in People With Cystic Fibrosis

Celtaxsys Inc. reported promising results today from an early stage clinical trial of a potential anti-inflammatory drug for people with cystic fibrosis.

| 2 min read
Health Care Reform | Our Advocacy Work | Insurance CF Foundation Responds to Final Short-Term, Limited-Duration Health Insurance Rule

Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.

| 2 min read
Advocacy CF Teen Advocates Visit Capitol Hill for 10th Annual Teen Advocacy Day

More than 200 advocates from 32 states traveled to Washington, D.C., on June 28 for the Cystic Fibrosis Foundation's 10th annual Teen Advocacy Day, which enabled teens to meet with their elected officials on Capitol Hill to fight for access to high-quality, specialized care for their friends and loved ones living with CF.

| 3 min read
Our Advocacy Work Cystic Fibrosis Foundation Responds to ICER Review of CFTR Modulators

The Cystic Fibrosis Foundation responds to the Institute for Clinical and Economic Review's assessment of the comparative clinical effectiveness and value of cystic fibrosis transmembrane conductance regulator (CFTR) modulators.

| 4 min read
Research | Drug Pipeline | Clinical Trials Phase 2 Study Shows Promising Results for Potential Mucus Clearance Drug

A new drug intended to make it easier to clear mucus from the lungs of people with cystic fibrosis showed promising results in a Phase 2 clinical trial. The drug, called SPX-101, blocks the overactive sodium channels that line CF lung cells.

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Research | Drug Pipeline | Advocacy President Trump Signs Right to Try Legislation Into Law

Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer.

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Our Advocacy Work Foundation Shares CF Expertise to Inform ICER Assessment

The Institute for Clinical and Economic Review (ICER) developed an assessment of the comparative clinical effectiveness and value of cystic fibrosis therapies. The Foundation provided input to help inform this process.

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Our Research Approach CF Foundation Awards Icagen Up to $11 Million for Nonsense Mutation Research

Icagen Inc. will focus on drug discovery, screening for compounds that could suppress nonsense mutations, and using computer modeling to identify molecules that are suitable to be developed into drugs.

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Great Strides | Fundraising Champion Runner Meb Keflezighi Teams Up with Lee University to Raise Over $1 Million in the Fight Against Cystic Fibrosis

Meb Keflezighi, one of the world's best runners, joined Lee University and ran in the 65 Roses 5K in Cleveland, Tenn. to support the fight against cystic fibrosis. Lee University was thrilled to welcome him as part of its longstanding tradition of raising funds in support of the CF Foundation's mission.

| 3 min read
Advocacy CF Foundation Hosts Congressional Briefing on Protecting People With CF and Other Pre-Existing Conditions

The event, held at the U.S. Capitol Visitor Center, aimed to educate members of Congress on the impact of the proposed rule to expand short-term insurance plans on people with serious and chronic health conditions. 

| 3 min read