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News and Press Releases
About the CF Foundation | Public Policy Statement from the Cystic Fibrosis Foundation on Passage of the EXPERRT Act in House of Representatives

Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs

| 5 min read
About the CF Foundation | Public Policy EXPERRT Act Benefiting Cystic Fibrosis and Other Rare Diseases Included in FDA Legislation

The U.S. House of Representatives and the Senate have both incorporated the Expanding and Promoting Expertise in Review of Rare Treatments Act (EXPERRT Act), championed by the CF Foundation, as part of a legislative package to reauthorize the U.S. Food and Drug Administration's (FDA) system for evaluating new prescription drugs and devices.

| 1 min read
About the CF Foundation | Public Policy Statement from the Cystic Fibrosis Foundation on the House Energy and Commerce Committee’s Health Subcommittee Approval of the EXPERRT Act

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

| 5 min read
About the CF Foundation | Public Policy | Drug Pipeline Statement from the Cystic Fibrosis Foundation on Senate HELP Committee’s Approval of the EXPERRT Act

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates March on the Hill to Attract Support from Members of Congress

On March 8, more than 40 Cystic Fibrosis Foundation volunteers from across the nation came together on Capitol Hill to speak out on behalf of their friends and family members with cystic fibrosis.

| 2 min read