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Advocacy Tax Reform Bill Expected to Be Signed Into Law

The package of tax reforms expected to be signed into law includes several provisions that will impact some people with cystic fibrosis.

| 3 min read
Advocacy | Insurance 17 Patient Advocacy Organizations: Congress Must Act to Stabilize Insurance Markets After Repealing Individual Mandate

A group of nonpartisan patient and consumer organizations issued a statement after passage of the Tax Cuts and Jobs Act.

| 2 min read
In the Spotlight | Advocacy Cystic Fibrosis Foundation Awards Sen. Susan Collins the Breath of Life Legislator Award

The Cystic Fibrosis Foundation awarded U.S. Sen. Susan Collins (R-Maine) the Breath of Life Legislator Award on Nov. 3 for her leadership in ensuring that people with cystic fibrosis have access to the adequate, affordable care they need to live full and healthy lives.

| 3 min read
Health Care Reform | Advocacy | Our Advocacy Work Ten Patient Advocacy Organizations Applaud Committee Focus on Market Stabilization

The organizations urge continued protections for patients.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work Twelve National Patient Advocacy Organizations Urge Senate to Vote ‘No’ on Advancing ACA Repeal

Patient and provider groups urge safeguard for the health and lives of millions of Americans with a bipartisan approach to reform.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work New CBO Score Confirms Senate Health Care Bill Still Fails to Protect Patients

Ten patient and provider groups, representing millions of Americans, issued the following statement in response to the release of the nonpartisan Congressional Budget Office's (CBO) scores of two pieces of health care reform legislation currently being considered by the U.S. Senate.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work Twelve Non-Partisan Patient and Provider Groups Urge Senate to Vote ‘No’ on Skinny Repeal Bill

Patient and provider groups urge the Senate to work together in a bipartisan fashion to ensure that Americans have access to affordable health care. 

| 2 min read
Health Care Reform | Advocacy Fifteen National Patient Advocacy Organizations Urge Congress to Oppose the ACA Repeal

The organizations called on Congress to take a bipartisan approach to reform.

| 2 min read
Health Care Reform | Advocacy | Our Advocacy Work New Draft of BCRA Fails to Adequately Protect People with Pre-Existing Conditions

Today, the Senate released a new draft of the Better Care Reconciliation Act (BCRA), including an amendment that would allow insurance companies to offer plans not in compliance with critical patient protections in current law. 

| 2 min read