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News and Press Releases
Research CF Foundation Awards $23M to 11 Sites in its Research Development Program

The Cystic Fibrosis Foundation has awarded more than $23 million across 11 sites in its Research Development Program (RDP), a network of research centers that brings together top-notch scientists from different disciplines to apply their expertise to the challenges of treating cystic fibrosis. 

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Teens Advocate on the Hill

A group of 62 enthusiastic teen advocates gathered in Washington, D.C. on June 25 to bring awareness of cystic fibrosis to Capitol Hill. During the 7th Annual Cystic Fibrosis Foundation Teen Advocacy Day, the teens highlighted the vital role that the CF Foundation plays in finding a cure for this life-threatening genetic disease. 

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About the CF Foundation Letter to the Community from Board Chair Catherine McLoud

To the CF Foundation Staff and CF Community: Today, after 35 years with the Cystic Fibrosis Foundation -- and 21 years as president and CEO -- Robert J. Beall, Ph.D., has announced he is stepping down. 

| 4 min read
About the CF Foundation | Public Policy | Advocacy White House Honors Advocate with Cystic Fibrosis

On July 8, the White House honored 30-year-old Emily Kramer-Golinkoff as a “Champion of Change” for her role in advocating for the integration of precision medicine into the U.S. healthcare system.

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About the CF Foundation CF Foundation’s Venture Philanthropy Model Featured on Front Page of The Washington Post

The Cystic Fibrosis Foundation's drug development model, mission and leadership are featured on the front page of The Washington Post today.

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Research | CFTR Modulators CF Foundation Celebrates FDA Approval of Orkambi as Important Advance for the CF Community

The Cystic Fibrosis Foundation celebrates the FDA's approval today of the lumacaftor/ivacaftor combination drug (Orkambi™) as an important advance for the cystic fibrosis community. Orkambi targets the underlying cause of the disease in people with two copies of the most common CF gene mutation.

| 4 min read
About the CF Foundation | CFTR Modulators Letter to the Community on Orkambi Approval

Today we received the exciting news that the U.S. Food and Drug Administration has approved Orkambi for people with cystic fibrosis ages 12 and older who have two copies of the F508del gene mutation, the most common CF mutation.

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About the CF Foundation | Public Policy | Health Care Reform Affordable Care Act Supreme Court Decision Impacts People with CF

Today, the Supreme Court decided to uphold the Affordable Care Act, allowing individuals who purchase health insurance on exchanges to continue receiving premium subsidies.

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About the CF Foundation | Fundraising NASCAR #18 to Sport CF Foundation Logo

Millions of NASCAR fans will tune in to this Saturday's race at Chicago Speedway, where ARRIS-sponsored driver Daniel Suarez will feature the Cystic Fibrosis Foundation logo on his #18 car.

| 1 min read