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News and Press Releases
About the CF Foundation | Public Policy | Research CF Advocate Provides Remarks about Kalydeco, FDA Review at Congressional Briefing

The Cystic Fibrosis Foundation participated in a Congressional briefing hosted by Friends of Cancer Research on July 24 to educate members of the U.S. Senate about new processes developed by the FDA to speed the approval of breakthrough therapies.

| 2 min read
About the CF Foundation | Public Policy | Advocacy Rep. Jim McGovern is New Co-Chair of Congressional Cystic Fibrosis Caucus

After more than six years of dedicated service as co-chair of the Congressional Cystic Fibrosis Caucus, Rep. Edward Markey (D-MA) has stepped down from the post as he assumes new responsibilities in the U.S. Senate. Rep. Jim McGovern (D-MA) will replace Markey, joining Rep. Tom Marino (R-PA) as co-chair of the Caucus.

| 2 min read
About the CF Foundation | Public Policy | Advocacy Teens Meet with Members of Congress to Raise Awareness About Cystic Fibrosis

After more than six years of dedicated service as co-chair of the Congressional Cystic Fibrosis Caucus, Rep. Edward Markey (D-MA) has stepped down from the post as he assumes new responsibilities in the U.S. Senate. Rep. Jim McGovern (D-MA) will replace Markey, joining Rep. Tom Marino (R-PA) as co-chair of the Caucus.

| 3 min read
About the CF Foundation | Public Policy | Insurance Members of Congress Express Concern about Proposed Changes to Social Security Disability Benefits

In an effort led by Congressional Cystic Fibrosis Caucus co-chairs Representatives Edward Markey (D-MA) and Tom Marino (R-PA) and Senator Michael Bennet (D-CO), 37 key members of Congress sent letters to the Social Security Administration (SSA) expressing their concern about a proposed rule that could make it more difficult for people with CF to receive disability benefits.

| 2 min read
About the CF Foundation | Public Policy | Insurance CF Foundation Expresses Concern about Proposed Changes in Disability Benefits

On behalf of the CF community, the Cystic Fibrosis Foundation has expressed its concern to the Social Security Administration (SSA) about a proposed rule that could make it more difficult for people with CF to receive disability benefits.

| 2 min read