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News and Press Releases
Public Policy CF Foundation Grateful for Continued Access to Trikafta in Colorado After Prescription Drug Affordability Board’s Ruling

The Board’s review put Coloradans with CF at the center of the discussion, helping to preserve vital access to Trikafta®.

| 2 min read
Advocacy | Insurance | Public Policy CF Foundation Urges Vertex Pharmaceuticals to Reverse Consequential Decision on Copay Assistance

206 care center directors sign a letter citing clinical consequences if decision moves forward. 

| 3 min read
Advocacy | Insurance | Public Policy CF Foundation Urges Vertex Pharmaceuticals to Address Its Decision to Decrease Copay Assistance for People with Cystic Fibrosis

Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.

| 3 min read
Advocacy | Antibiotics | Public Policy 165 Organizations Urge Lawmakers to Advance PASTEUR Act Before Congress Ends

Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.

| 3 min read
Public Policy CF Foundation Celebrates Passage of the Inflation Reduction Act

The law signals major improvements in health care affordability for people with CF.

| 3 min read
About the CF Foundation | Public Policy | Advocacy Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

| 3 min read
About the CF Foundation | Public Policy | Lung Transplantation Community Liaison Piper Beatty Participates in FDA Meeting on Organ Transplantation

Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.

| 2 min read
About the CF Foundation | Public Policy | Insurance Archived Webinar: Disability and Cystic Fibrosis

On Thursday, September 22, experts from the Social Security Administration joined the CF community for a conversation on disability eligibility and the application process.

| 1 min read
About the CF Foundation | Public Policy | Insurance Social Security Administration Updates Eligibility Requirements for Disability

The CF Foundation applauds the Social Security Administration's updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day and to Mark Launch of the Senate CF Caucus

As part of the Cystic Fibrosis Foundation's eighth annual Teen Advocacy Day, more than 75 teens from 35 states met with elected officials in Washington, D.C., on June 23 and advocated on behalf of their loved ones with cystic fibrosis.

| 3 min read