News and Press Releases
Health Care Reform | Advocacy U.S. Supreme Court Rules on the Affordable Care Act

The Cystic Fibrosis Foundation celebrates the decision issued by the United States Supreme Court in California v. Texas, ultimately protecting the Affordable Care Act. 

June 17, 2021 | 3 min read
Health Care Reform | Advocacy CF Foundation Responds to Court Decision to Overturn the ACA

On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.

Dec. 17, 2018 | 3 min read
Health Care Reform The Trump Administration Announces Changes to Health Insurance Markets

President Donald Trump signed an executive order on health care that could weaken patient protections. He also announced a plan to stop paying cost-sharing reduction (CSR) subsidies to health insurance companies. Both decisions could negatively affect people with cystic fibrosis.

Oct. 13, 2018 | 3 min read
Health Care Reform | Our Advocacy Work | Insurance CF Foundation Responds to Final Short-Term, Limited-Duration Health Insurance Rule

Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.

Aug. 2, 2018 | 2 min read
Health Care Reform Senate HELP Committee Proposes Bipartisan Market Stabilization Package

The draft bill, crafted by the Senate Health, Education, Labor, and Pensions (HELP) Committee, aims to bring stability to the health insurance marketplaces.

Oct. 19, 2017 | 2 min read
Health Care Reform | Advocacy CF Advocates Convene on Capitol Hill for Teen Advocacy Day to Fight for Adequate, Affordable Care

As part of the Cystic Fibrosis Foundation's ninth annual Teen Advocacy Day, 162 advocates from 38 states met with elected officials in Washington, D.C., to tell their stories and make sure the cystic fibrosis community is heard in ongoing health care reform discussions.

June 23, 2017 | 3 min read
Health Care Reform | Advocacy | Our Advocacy Work Senate Health Care Bill Fails to Adequately Protect People with Cystic Fibrosis

Today, the U.S. Senate released its version of the health care reform bill, titled the Better Care Reconciliation Act, and in response, the Cystic Fibrosis Foundation affirmed its opposition to the legislation.

June 22, 2017 | 3 min read
Health Care Reform | Advocacy House of Representatives Passes Health Care Reform Legislation

The U.S. House of Representatives has passed the American Health Care Act (AHCA), legislation that fails to adequately protect people living with cystic fibrosis.

May 4, 2017 | 3 min read
Health Care Reform | Advocacy | Insurance Cystic Fibrosis Foundation Joins 86 Organizations to Call on Congress to Protect Medicaid

On March 20, the Cystic Fibrosis Foundation and 86 other organizations called on Congress to protect Medicaid, a critical source of coverage for people in the cystic fibrosis community. 

March 20, 2017 | 2 min read
Health Care Reform | Advocacy Cystic Fibrosis Foundation Issues Statement on House Health Reform Bills

This week, House committees released legislation to repeal and replace the Affordable Care Act. The Cystic Fibrosis Foundation issued a statement consistent with our ongoing work to promote policies to help ensure that people with cystic fibrosis have access to high-quality, specialized care and adequate affordable insurance.

March 8, 2017 | 3 min read