CF Infant Care

Learning that your baby has cystic fibrosis may come as a shock, especially if you do not have a family history of the disease, but you are not alone.

2 min read
Summary
  • We offer a number of resources to help you understand the disease and find the best care for your child.
  • We also know that, sometimes, it is most helpful to hear from others who have been in your shoes.

CF Infant Care: First Year of Life

In "CF Infant Care: First Year of Life," which is part of our "Pathways to Lifelong Health" video series, parents of children with cystic fibrosis share their personal experiences about how they cared for their new baby during the first year. CF care team members also share their perspectives on diagnosis, nutrition, and airway clearance techniques.

Hope for the Future With CF

Preston W. Campbell, III, M.D., then executive vice president for medical affairs of the Cystic Fibrosis Foundation, gives a message of hope to families whose infants have been diagnosed with CF.

CF Infant Care First Year of Life

Ginny Drapeau, BSN, RN, CCRP, clinical research coordinator at Connecticut Children's Medical Center and manager of the Pathways to Lifelong Health DVD series, talks about the purpose of this video series.

Newborn Screening and Diagnosis 

Parents of children with CF talk about how they felt and what they did when they first learned their child had CF. 

Enzymes and Nutrition

[Embed video: https://youtu.be/a2F92RsbEWU]

[Format for caption]A dietitian and parents of children with CF discuss how to give enzymes, provide proper nutrition and calories, and look for signs of malabsorption.

Airway Clearance 

[Embed video: https://youtu.be/qIJZUhco6ks]

[Format for caption]A respiratory therapist and parents of children with CF talk about managing lung health, and show the different techniques used for airway clearance. 

Balance and Family Life

[Embed video: https://youtu.be/Ka9KpJuR6A8]

[Format for caption]Parents of children with CF talk about how they coped with the disease and found balance in daily life. 

Living With Cystic Fibrosis 

[Embed video: https://youtu.be/YITSNtvbwPE]

[Format for caption]An adult with CF talks about how she has managed her disease growing up and accomplished many milestones.

To view other videos in the "Pathways to Lifelong Health" series, watch Living With CF: Day Care to High School (Pathways to Lifelong Health Series 2) and Living a Healthy Adult Life With CF (Pathways to Lifelong Health Series 3). 
 

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Topics
Caring for a Child With CF
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Clinical Care Schedule for Newborns to 5-Year-Olds with CF Download PDF
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