Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
2701 NW Vaughn Street, Suite 203
Senior Development Director: Joe Boyd
The Oregon Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission –
finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
Together: Celebrating 65 YearsOn Friday, June 5, at 5:00 p.m. ET, the cystic fibrosis community will gather virtually to celebrate all we have achieved together over the last 65 years and unite our focus to achieve our mission to find a cure for cystic fibrosis. Register now.
Portland 2020 Great Strides
9:00 AM, May 2, 2020
Oaks Amusement Park
Together: Celebrating 65 Years
5:00 p.m. ET, June 5, 2020
This online event will feature voices from the CF community in an hour-long celebration of all we have accomplished together, along with opportunities to connect with other attendees as we move forward on the path to cure cystic fibrosis. Now more than ever, our ties to each other and our shared mission will help us persevere.
Oregon Xtreme Hike 2020
5:00 AM, June 27, 2020
Pacific Crest Trail - Olallie Lake trailhead
For the first time in the Pacific Northwest, the Cystic Fibrosis Foundation is reaching new heights - 27.6 miles along the Pacific Crest Trail. The Cystic Fibrosis Foundation's Xtreme Hike program takes hikers through some of the most scenic trails in the nation to raise funds and awareness for cystic fibrosis.
Oregon CF Cycle for Life 2020
6:30 AM, July 18, 2020
Lady Hill Winery
Get your wheels in motion and join us for our 11th annual cycling event as we ride through some of the most picturesque and scenic terrain in the Willamette Valley's famed wine country. We are thrilled announce that we will be hosted again by Lady Hill Winery for both our start and post-ride party!
Eugene 2020 Great Strides
8:30 AM, August 1, 2020
Alton Baker Park
Larry VandenBrink's Chef's Dinner Gala
5:00 PM, October 8, 2020
Portland Art Museum
Join us for an extraordinary evening and experience critically acclaimed Chef Vitaly Paley's unmatched creativity as he prepares a soul-filled four-course dinner paired with incredible local wines.
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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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