Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
4151 Spruill AvenueSuite 250
Executive Director: Jen Nielson
The South Carolina Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
South Carolina CF Cycle for Life 2019
7:00 AM, September 28, 2019
Bay Creek Park
Join us September 28th for our annual CF Cycle for Life ride in the Lowcountry. Each year, more than 100 cyclists from all over South Carolina come together to ride “the road less traveled” in support of finding a cure for cystic fibrosis. This event is for all riders from beginners to advanced who are looking for a unique cycling experience.
Charleston Brewer's Ball
6:00 PM, October 3, 2019
Founders Hall at Charles Town Landing
Join Charleston's Finest business and community leaders, young professional guests, and more for an evening of beer, food, music and networking in support of a great cause.
Columbia's Finest/Brewer's Ball
6:00 PM, October 17, 2019
Join Columbia's Finest business and community leaders, young professional guests, and more for an evening of beer, food, music and networking in support of a great cause. The Brewer's Ball invites guests to enjoy hand crafted beers from the best local brewers and food samplings from the hottest local restaurants, listen to music, bid on fabulous prizes in live and silent auctions, and mix and mingle with the Upstate's best and brightest - while honoring the 2019 class of Columbia's Finest.
Lowcountry RedTrout Celebrity Classic
November 7, 2019
The Charleston Harbor Resort & Marina
The Lowcountry RedTrout Celebrity Classic will proudly celebrate 18 years in 2019. This 30+ boat inshore fishing tournament was started in 2002 by Champ Smith and Gary Ellis to help the Cystic Fibrosis Foundation support research needed to find a cure for cystic fibrosis (CF).
Shoot for the Cure
9:00 AM, November 15, 2019
Kiawah Island Sporting Club
Please join us Friday, November 15 as we Shoot for the Cure for CF! The day will begin with a friendly competition as participants complete a 100-target, 10 stand, sporting clays course at the beautiful and exclusive Kiawah Sporting Club. Bragging rights will be adorned as the top team and top shooters will be recognized at the Shootout Soiree that evening at Founder's Hall!
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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