Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know -- I have experienced it myself and had to accept government assistance to buy food.
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The U.S. Food and Drug Administration has approved a device, called RELiZORB®, that helps break down beneficial fats in supplemental nutrition provided via G-tubes.
As a person with cystic fibrosis, I struggled all my life to gain weight, despite eating a high-calorie, high-fat diet. Once I started Trikafta® and my weight increased to normal levels, I had to learn a new, healthier way to eat.
More women with cystic fibrosis are reaching reproductive age, becoming pregnant, and delivering babies. Nutrition before and during pregnancy is essential for all women.
The thick, sticky
Like vitamins, minerals also help with normal growth, function and maintenance of good health. Individuals with cystic fibrosis can be deficient in these minerals.
My son has had a problem with eating ever since he was born prematurely and diagnosed with cystic fibrosis. After a lot of stress and anxiety about reaching his weight goals, we finally enlisted an occupational therapist, who helped him learn to love eating.
Individuals with cystic fibrosis require more energy to breathe normally, fight lung infections and compensate for poor digestion. For these reasons, they need more calories than people without CF.
Individuals with cystic fibrosis and other chronic diseases often have a “hidden” loss of muscle mass, despite normal body weight and BMI. Increasing your protein intake and exercising regularly are easy ways to preserve muscle mass.
Your body needs vitamins to help it grow, function, and fight off infection. Try to incorporate foods rich in these vitamins and take a vitamin supplement, if necessary.