Sometimes, being the “squeaky wheel” is the only way to make a positive change.
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Anna McVey-Tyson
Before you can walk a mile in a person with CF's shoes, you have to put on a nebulizer.
Cindy George
Connie Richless, an adult CF nurse coordinator, has seen a lot of changes in her past 22 years of working with CF patients.
Dora Nagy
Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.
Christina Roman
Hear from John P. Clancy, M.D., the first plenary speaker at this year's NACFC, about recent advances in personalized medicine, which could allow clinicians to better tailor treatment to the individual with CF.
Susan Schept
Enteral tube feedings are an important treatment option in cystic fibrosis when oral intake is not adequate to meet nutritional goals. A multidisciplinary Cystic Fibrosis Foundation panel developed consensus evidence-based guidelines on all aspects of care regarding enteral feeding.
7 min read
The Mutation Analysis Program provides free genetic testing to people with cystic fibrosis to help identify their CF gene variants.
7 min read
Successfully managing a chronic disease like cystic fibrosis means more than just taking medications. It requires trusting partnerships between people with CF and their families with their CF care teams to develop treatment plans that line up personal life goals with health goals.
6 min read
As a clinician, you're critical in helping people with CF maintain their quality of life. We're committed to helping you partner with your patients and their families by providing resources you can use to improve and continue to provide high-quality care.
There have never been as many new CF drugs in development as there are today. In the second plenary at NACFC, Dr. George Retsch-Bogart outlined the progress we've made, the road ahead and the changes needed to make it all possible. Read on for my key takeaways.
Christina Roman