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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
In 2022, the community’s determination helped us achieve new milestones and fueled our mission for a cure for all. Read our annual report to learn more about our achievements this year, and about our continued work toward helping people with cystic fibrosis live long, fulfilling lives.
Our vendors play a vital role in helping us fulfill our mission at the Cystic Fibrosis Foundation. As such, we aim to build mutually beneficial relationships with all our vendors while holding them to the same high standards we hold ourselves to. Learn more about these standards, and find other helpful documents and information.
We hold ourselves accountable to our donors, volunteers, people with CF and their families, and the public. Learn about our governance and policies.
A new law that allows patients with rare diseases to participate in clinical trials without losing eligibility for public health care benefits went into effect yesterday. The bill, known as the “Improving Access to Clinical Trials Act” (IACT), was championed by the Cystic Fibrosis Foundation and signed into law in October 2010.
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The Cystic Fibrosis Foundation's successful business model was at the center of a congressional briefing in Washington, D.C., today, which focused on strategies for jump-starting drug development for rare diseases.
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