As we look forward to 2018, our President and CEO, Preston W. Campbell, III, M.D., shares a special holiday message to the cystic fibrosis community.
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The top 10 most-read blog posts of 2016 cover a range of topics and demonstrate the diversity of the cystic fibrosis community.
As I join the Foundation as chief operating officer, I look forward to taking the time to hear as many community voices as I can, to learn from all you have done and to engage to help do my part.
Today I am proud to introduce More Than CF. Your struggles, your achievements, your routines and the small surprises of your every day breathe life into the Foundation's work. You can get involved by sharing your experiences with us on Facebook, Twitter and Instagram and by searching #morethanCF.
Many individuals and organizations are out there serving people with CF and their families in their daily lives. Through the new Impact Grant program, the Foundation will fund individuals or organizations who have a program or project that benefits the community.
March on the Hill brings a mix of new and familiar faces to Capitol Hill every year. The connections and stories that our advocates share with their elected officials are making lasting impressions that impact the entire CF community. And as this event has grown, so too has the cystic fibrosis story.
One of the questions that we ask our representatives during the Foundation's signature advocacy event, March on the Hill, is to join the Congressional CF Caucus. Here is my story of what happened when I (accidently) asked a senator to join that caucus.
A few weeks ago, while contemplating the trip I was about to take to Washington D.C. to join my fellow advocates for the Cystic Fibrosis Foundation's tenth annual March on the Hill, I challenged myself to "think big." So I sat down in front of the computer and wrote a letter to the President of the United States.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
As we reflect on 2016, we are so thankful to our friends around the country, dedicated researchers, care center professionals, volunteers and, most of all, those of you living with CF.