Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation's Virtual Teen Advocacy Day to advocate for the CF community.
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More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.
I got into advocacy to work for the common good of all people with cystic fibrosis. Little did I know that this work would help me in a very personal way.
If you have cystic fibrosis like I do, then you know how important it is to protect our health care. That's why we must advocate for three key policy principles that are critical to allowing people with CF to access the high-quality, specialized care we need.
Austin Faught started advocating for those with cystic fibrosis in 2016 when his health insurer dropped his son's CF care team from its plan. He has found that advocacy gets easier with practice.
I didn't always think that Teen Advocacy Day could make a difference. Turns out I was wrong.
As Congress debates how to stabilize the health insurance marketplaces, several proposals would directly improve the ability of people with cystic fibrosis to access high quality, specialized care.
With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.