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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as are nebulizers and vests. Learning more about insurance can help make sure you can get the care you need.