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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
If you have cystic fibrosis, you have sticky mucus in your digestive system. You need to take enzymes to digest food and medications to stay regular. Doing this will help you grow, maintain your weight, and fight lung infections.
Nutritional needs for people with cystic fibrosis are determined by their degree of malabsorption, activity level, and the severity of lung disease. Individuals with CF typically need 1 ½ to 2 times as many calories as people without CF.
People with cystic fibrosis are living longer than ever. As people age, bones get weaker and break more easily. Let's look at different ways that this can be prevented with nutrition and exercise.
Tube feeding can be a great way to get the calories and nutrients that you or your child with cystic fibrosis need to gain and maintain a healthy weight. Explore this as an option with your CF care team.
Good nutrition for children with cystic fibrosis means high-calorie foods, enzymes, vitamins and minerals. It also can mean accepting tube feeding as a way to help your child thrive.