As a high school nurse responsible for 1,200 students -- three of whom have cystic fibrosis -- I'm finding this upcoming school year to be particularly challenging. Here is how I implemented a plan of action to keep each student safe while balancing their specific needs.
Creative use of technology can help build a more connected community. Read on to learn about the Cystic Fibrosis Foundation's innovative efforts to include more people with cystic fibrosis.
Learning to help my wife access her port is part of our shared journey with CF. Check out our video for some tips and tricks we’ve learned along the way.
Want to know why getting a flu shot is so important? I ignored my early flu symptoms, which ended up spoiling the holidays and leading to an exacerbation.
Although becoming a father to my two boys has been one of the greatest experiences of my life, there is a delicate balance between being a parent and having cystic fibrosis. Fortunately, I've found a couple of tips that help.
Collaborative effort identifies 40 cases of COVID-19 across eight countries; outcomes for this high-risk population were reported in the Journal of Cystic Fibrosis
A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.
Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.
People who are not used to isolation may feel bored during this pandemic-driven physical distancing. But people with cystic fibrosis are experts at keeping themselves busy and fulfilled at home.
With Five Feet Apart hitting theaters in March, we've been getting some questions about infection prevention control (IPC) and what the film might mean for the CF community. Here's what our CF center and hospital have been doing to support the IPC guidelines and encourage questions among our patients and families.