Dr. Dorothy Andersen first wrote about cystic fibrosis in 1938, and our understanding of the disease has significantly evolved since. There are still many misconceptions about what CF looks like today, from the person who lives with the disease to how it manifests.
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At the Cystic Fibrosis Foundation, we commit to equity, racial justice, diversity, and inclusion as core principles guiding our efforts to provide all people with CF the opportunity to live long, fulfilling lives.
Receiving a denial for a service or treatment from your insurance company can leave you with many questions. Fortunately, most insurers have a process, called an appeal, by which you can ask them to reconsider their decision to deny coverage.
From budgeting for the everyday, to triaging the unexpected and dreaming of the future, there is a lot to consider when building a financial plan. While living with cystic fibrosis may be costly, financial planning can help ease some of the stress you may feel so you can focus on other areas of your life.
Having a disaster and emergency preparedness plan during a natural disaster or emergency is especially critical when someone has a chronic illness. The Cystic Fibrosis Foundation made the following guide to help you or someone you know with cystic fibrosis prepare for a disaster or emergency.
The Cystic Fibrosis Foundation is aggressively pursuing potential treatments for people with CF who have nonsense and rare mutations who will not benefit from drugs known as modulators, which correct the malfunctioning cystic fibrosis transmembrane conductance regulator (
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T.
People living with cystic fibrosis may apply for Social Security Disability Insurance or Supplemental Security Income, programs that serve as a source of income and health insurance coverage for people who are unable to work due to their health status.
Learn more about President and Chief Executive Officer Michael Boyle, MD.
The Indiana Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more!