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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases

Foundation and Legislative Supporters Pushed for Bill

Bill Would Remove Financial Penalties for Participating in Research Studies

A new law that allows patients with rare diseases to participate in clinical trials without losing eligibility for public health care benefits went into effect yesterday. The bill, known as the “Improving Access to Clinical Trials Act” (IACT), was championed by the Cystic Fibrosis Foundation and signed into law in October 2010.