As a new mom, it can be difficult to balance motherhood with maintaining your cystic fibrosis care. Here are four tips that made my journey as a new mom with CF a little easier.
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Many people with cystic fibrosis experience hemoptysis. Although that can be serious and is often frightening, most often it's not as serious as you might think. Let me set the record straight.
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Although packing up and moving to college is not easy for anyone, it becomes more complicated for a person living with cystic fibrosis. Not only do we have to adjust to the unfamiliar ways of college life and be entirely in charge of our health, but the group of people we trust with our life changes as well.
Because so much rides on them, the pulmonary function tests (PFT) -- that are a part of every cystic fibrosis care center visit -- fill me with anxiety.
Cystic fibrosis can be isolating, but people with CF know what others go through every day. It makes the moments of connection all the more meaningful.
Although I am very involved in my son's cystic fibrosis care, I have learned to rely on the insight and expertise of his care team when mine isn't enough.
The video of the second plenary at this year's North American Cystic Fibrosis Conference was focused on lung transplantation and is now available to watch online. Having had a lung transplant and as one of the people with CF featured in the video, this particular session had a personal meaning for me.
My mother's approach to her cystic fibrosis was matter-of-fact, allowing her personality to take center stage.
It's not a crime to projectile cough, but sometimes it feels like it is.