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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases

Foundation and Legislative Supporters Pushed for Bill

Bill Would Remove Financial Penalties for Participating in Research Studies

Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials

This month, 15-year-old Molly Bonnell and her sister Emily, 13, who have cystic fibrosis, discovered how easy it is to make their voices heard in Congress -- without leaving their living room.