Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials
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Life with cystic fibrosis is complicated, but there are ways to make things run a bit more smoothly. Here are some of my favorite ways to stay organized with CF.
Toni Marie Villines
This month, 15-year-old Molly Bonnell and her sister Emily, 13, who have cystic fibrosis, discovered how easy it is to make their voices heard in Congress -- without leaving their living room.
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It wasn't until my son was born with cystic fibrosis that I became motivated to raise money for a cause. In the past three years, I have learned quickly how to manage my time and maximize donations.
Jaclyn Strube
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