The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
Site Search
Showing 1 - 10 of 37 results
The Success with Therapies Research Consortium helps the clinical study of interventions so people with cystic fibrosis can improve the consistency of their day-to-day management of their CF to optimize health outcomes and quality of life.
7 min read
Learn how your child's
7 min read
This competition is awarding one year of free lab and office space at Bakar Labs of University of California Berkeley to applicants with emerging technology in gene editing, gene delivery, and gene therapy/gene insertion that may be applied to CF.
4 min read
Once your
5 min read
There are two main types of clinical studies in CF research. Both are important to move research forward and provide the best outcomes for people with CF.
3 min read
Clinical trials are critical to developing new treatments for CF. So, how exactly does an experimental drug become an approved therapy?
6 min read
Choosing to volunteer in a
4 min read
Cystic fibrosis is caused by mutations in both copies of the cystic fibrosis transmembrane conductance regulator (CFTR) gene. Scientists are examining whether it is possible to correct the mutations through a process called gene editing.
6 min read
Stem cells are a special type of
4 min read