As a parent of two young adults with cystic fibrosis, Peter knows the financial challenges and obstacles people with the disease face when trying to access quality, affordable care.
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With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.
mRNA therapy is one way to deliver the correct genetic instructions to cells, which would allow them to make functional CFTR protein regardless of an individual’s CF mutations.
Cystic fibrosis is caused by mutations in both copies of the cystic fibrosis transmembrane conductance regulator (CFTR) gene. Scientists are examining whether it is possible to correct the mutations through a process called gene editing.
Receiving a denial for a service or treatment from your insurance company can leave you with many questions. Fortunately, most insurers have a process, called an appeal, by which you can ask them to reconsider their decision to deny coverage.
People living with cystic fibrosis may apply for Social Security Disability Insurance or Supplemental Security Income, programs that serve as a source of income and health insurance coverage for people who are unable to work due to their health status.
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to provide a correct copy of the gene to treat CF.
People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone.